THE IMPORTANCE OF PALLIATIVE CARE IN PEDIATRICS: PROVIDING COMFORT AND QUALITY OF LIFE TO CHILDREN

Authors

DOI:

https://doi.org/10.47820/recima21.v5i6.5324

Keywords:

Palliative Care, Pediatrics, Oncology.

Abstract

Pediatric Palliative Care (PPC) are care actions aimed at children and their families offered by a multidisciplinary team at all levels of health care. Objective: To analyze the importance and relevance of palliative care in pediatrics present in hospitals. Methodology: This is an integrative review of the literature, whose search terms were: “Palliative Care”; "Pediatrics"; “Oncology”, a total of 18 articles being analyzed. Result and Discussion: Studies show that the moment of pediatric illness encompasses, in addition to the physical dimension, mental and spiritual issues of the child and their family. Faced with the diagnosis, they experience feelings of fear, sadness, anguish and insecurity, as well as fear of a possible separation from their families and the possibility of finitude. In contrast, the integration of CPP into the care of children with serious illnesses improves their quality of life, promoting comfort and support. Furthermore, home-based CPP increased the quality of life of these patients, as they provide the experience of games and family contact, promoting physical and mental well-being. However, it has been noted that the lack of clinical training, as well as education of families with children living with serious illnesses, represents a major barrier for children and families in accessing qualified palliative care. Conclusion: The assistance practice of pediatric palliative care is still in deficit in the context of modern medicine. There is a clear need for public policies that aim for this multidisciplinary support with technical mastery of pediatric palliative care.

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Author Biographies

  • Lucio Donizete de Souza Junior

    Universidade Professor Edson Antônio Velano - UNIFENAS.

  • Alexandre Teixeira do Amaral

    Claretiano Centro Universitário.

  • Fernanda Vilas Boas Meneguel

    Universidade Professor Edson Antônio Velano - UNIFENAS.

  • Maria Eugênia Giraldi Solano

    Universidade Professor Edson Antônio Velano - UNIFENAS.

  • Carollayne Mendonça Rocha

    Universidade José do Rosário Vellano - UNIFENAS.

References

AZEVEDO, C. S. et al. No fio da avalha: a dimensão intersubjetiva do cuidado aos bebês com condições crônicas complexas: The intersubjective dimension of caring for babies with complex chronic conditions. Revista de Saúde Coletiva, v. 29, p. 1-8, 2019. DOI: https://doi.org/10.1590/s0103-73312019290406

BENINI, Franca et al. International standards for pediatric palliative care: from IMPaCCT to GO-PPaCS. Journal of pain and symptom management, v. 63, n. 5, p. e529-e543, 2022. DOI: https://doi.org/10.1016/j.jpainsymman.2021.12.031

BEZERRA, L. R. et al. O que os médicos e enfermeiros conhecem sobre cuidados paliativos em pediatria?. 2016. Dissertação (Mestrado em Medicina Integral) - Instituto de Medicina Integral Professor Fernando Figueira (IMIP), Recife, PE, 2016.

DAY, S. W. et al. Centro Latino-americano de Educação em Enfermagem em Oncologia Pediátrica. Cancer Nurs, v. 36, p. 340-345, 2013.

FRANÇA, J. et al. Experiência existencial de crianças com câncer sob cuidados paliativos. Revista Brasileira de Enfermagem, v. 1, p. 1320-1327, 2018.

FREEDMAN, Jason L. et al. Supportive care in pediatric oncology: Opportunities and future directions. Cancers, v. 15, n. 23, p. 5549, 2023. DOI: https://doi.org/10.3390/cancers15235549

FRIEDRICHSDORF, S. J. et al. Development of a Pediatric Palliative Care Curriculum and Dissemination Model: Education in Palliative and End-of-Life Care (EPEC) Pediatrics J. Pain Symptom Manage, v. 58, p. 707-720, 2019. DOI: https://doi.org/10.1016/j.jpainsymman.2019.06.008

GUIMARÃES, T. M. et al. Palliative care in pediatric oncology in nursing students' perception. Esc Anna Nery, v. 1, p. 261-267, 2016. DOI: https://doi.org/10.5935/1414-8145.20160035

MARÇOLA, L. et al. Análise dos óbitos e cuidados paliativos em uma unidade de terapia internsiva neonatal. Revista Paulista de Pediatria, v. 35, 2017. DOI: https://doi.org/10.1590/1984-0462/;2017;35;2;00012

MARCUS, K. L. et al. Impact of specialized pediatric palliative care: a systematic review. Journal of pain and symptom management, v. 59, p. 339-364, 2020. DOI: https://doi.org/10.1016/j.jpainsymman.2019.08.005

MARTINS, G. B.; DA HORA, S. S. Família e Cuidados Paliativos em Pediatria: Desafios à Garantia do Cuidado. Revista Brasileira de Cancerologia, v. 62, p. 259-262, 2016. DOI: https://doi.org/10.32635/2176-9745.RBC.2016v62n3.339

MITCHELL, S. et al. Specialist pediatric palliative care services: what are the benefits?. Archives of disease in childhood, v. 102, p. 923-929, 2017. DOI: https://doi.org/10.1136/archdischild-2016-312026

NAUFEL, L. Z. et al. Physicians knowledge about patietns religious beliefs in pediatric care. Revista Paulista de Pediatria, v. 37, 2019. DOI: https://doi.org/10.1590/1984-0462/;2019;37;4;00003

NÉRIS, B. D. et al. Crianças em terminalidade na perspectiva de cuidados paliativos: percepção dos enfermeiros. Varia Scientia-Ciências da Saúde, v. 4, p. 127-136, 2019.

PINHO, A. A. et al. Repercussões dos cuidados paliativos pediátricos: revisão integrativa. Revista Bioética, v. 28, 2021. DOI: https://doi.org/10.1590/1983-80422020284435

SANTOS, G. S. et al. Cuidados paliativos pediátricos: arte, essência e ciência no cuidado de crianças com doenças limitantes ou ameaçadoras da vida. 2021. Dissertação (Pós-Graduação em Psicologia da Saúde) - Universidade Estadual da Paraíba, Paraíba, 2017.

SNAMAN, J. M. et al. Pediatric palliative oncology: the state of the science and art of caring for children with cancer. Pediatric palliative oncology, Current Opinion in Pediatrics, v. 30, p. 40-48, 2018. DOI: https://doi.org/10.1097/MOP.0000000000000573

SOARES, Vanessa Albuquerque et al. A importância do brincar para criança com câncer hospitalizada em cuidado paliativo. Revista de Enfermagem da UFPE, v. 1, p. 1047-1053, 2016.

Published

01/06/2024

How to Cite

THE IMPORTANCE OF PALLIATIVE CARE IN PEDIATRICS: PROVIDING COMFORT AND QUALITY OF LIFE TO CHILDREN. (2024). RECIMA21 - Revista Científica Multidisciplinar - ISSN 2675-6218, 5(6), e565324. https://doi.org/10.47820/recima21.v5i6.5324